The Gift That Keeps on Giving

Another chemotherapy treatment day rolled around yesterday. That meant another 6:45am alarm, 4.5 hours in the hospital on a Saturday and more baked goods for the nurses. Yesterday I made them chocolate chip banana bread. I’ll save that material for the next Chemotherapy Diaries post though, thank you; I’m collecting ammunition for it with every second that passes. But this isn’t a blog based on chemo complaints. This post has a more positive topic: thankfulness.

One of the significant side-effects of having cancer that is not listed on the NHS website is the incredible opportunity to see the best in human beings come out constantly and unrelentingly. I find myself humbled time and time again by the actions of others. This is another post, similar to my Friends & Family post, where my only goal is to highlight the amazing things people have done for me and give thanks. I’m only covering a select group of scenarios here, but I have plenty. I plan to slowly drop these things into other blog posts over time. “A steady flow of content, how irresistible,” I think to myself, stroking my black cat and cackling to the sky. I will name drop everyone one day, in one way or another.

The first thing I woke up to yesterday morning, doing my usual scan of Twitter and WordPress in bed, was this post from Dr. Eric Perry recommending my blog to his 33K+ followers. I was truly bowled over by the gesture. His blog is far more advanced than mine, both in form and purpose. His articles are written eloquently, always have a fantastic central theme, and contain well-researched information to support the points. It is an excellent self-help blog, and I am so honoured to have my blog featured within its work. To everyone who has joined Ebb and Flow from that recommendation, welcome, and I hope it lives up to the expectations set by Dr. Eric. I’ve already received touching comments from many of you, and it made my treatment day feel so special and joyous, 2 words I usually don’t associate with the chemotherapy ward.

The next person in the firing line is my cousin Anna. Unfortunately, she lives in Europe, so I seldom see her or her talented children. They play various instruments among the 3 of them. After a family wedding in Germany that I could not attend, my family returned home full of praise for her children’s instrumental skill after they performed there. Upon reading one of my Chemotherapy Diaries posts where I had complained about my hands cramping (as they are now) because of the drugs, she sent me a little gift. The below fingerless gloves arrived with a lovely note inside, telling me that they were to help alleviate the cramping when writing. I wear them often and they not only help the cramping by warming up my hands, but have a similar effect on my heart. What a beautiful gesture. Thank you so much, Anna.

A more general thank you next to an exceptional person in my life. Her name is Daniella, but everyone knows her as Dee. She insists that it is spelt ‘D’, but I cannot fathom something so ridiculous. D is a letter and something you try to avoid getting in an exam in school, not a name. In all seriousness, Dee has supported me so much throughout the 6 years I’ve known her, though more than ever since the hospital visits started. There are few people I find myself speaking so openly to. She is the first person I cried to when I was first diagnosed with a cancerous tumour. I had managed to keep it together with my fiance Anna, choosing a display of strength over vulnerability. Within 2 minutes of speaking to Dee, I just collapsed. With every supportive text, weekend visit and comforting word, she has been a pillar in my life that has withstood so much stress, emotion and pain. I love her dearly, and I will try my very best to be there for her in the same capacity that she has been there for me.

My best friend Luke is to thank next. I hope he doesn’t mind me saying, but he has had his own fair share of battles with mental health. When I was living and working in the US, I spent nights worrying about him and speaking to him as often as possible. I always wondered how vulnerable he was, how things were going for him and if he was managing to win his battles. It was hard being so far from a friend you knew was suffering. He has a wonderful girlfriend and seems better at managing these days, or so I hope. I can’t say, though, because he somewhat selfishly always speaks to me about my situation, asking how I’m feeling and providing a reasonable voice when I feel worried. All this, as well as making me laugh more than anyone I know (my fiance Anna is close second here; she won’t appreciate being second, though). Every time I see him, I cry with laughter at least once. The positive effect on my ability to fight cannot be understated. He’s been my best friend since we were both in school, and his intelligence, wit and enormous heart continue to surprise me every day.

Finally, my fiance Anna. She has had a good amount of air time in this blog but it is mostly in passing, during The Road to Diagnosis series and in other places. We only met 2 years ago. If the Covid pandemic had not occurred, I would have still been living and working in Philadelphia, US, and I almost definitely would not have met her. We met during lockdown 1, and within 3 months were looking at properties to buy together in London. When you know, you really do know. I thought it was a cliche but I’ve felt it. Meeting Anna has proved to me that sometimes things are fated to happen. If I hadn’t met her, I don’t know how I would be dealing with my cancer diagnosis. That isn’t to discredit the role of friends, family, and everyone else, but Anna is constant support for me in a way that only someone you love can be. She teaches me so much every day through her kindness, her ability to laugh at everything and how she can wear pyjamas during every work call; it’s quite impressive how little she dresses for work these days. I can’t wait to see what our lives bring us and she’s one of the main reasons I’m fighting this cancer with the force I am – I cannot stand missing all of the things she’s going to do in her life, and I refuse to not be part of them.

Of all the talk of positivity and hope, I owe so much to the actions of others. I do not stay positive every second of every day, and I don’t expect myself to be. Suffering alone is tough. The hard miles come during the sleepless nights, the nausea-laced days and when the ruthless nature of the cancer is more prominent in my mind than the possibility of survival. Small actions of kindness, a handwritten card, some gloves, unannounced flowers, all represent another human’s empathy and want to contribute to something otherwise out of their control. It isn’t about the present; it’s about the human spirit they represent. The text messages, comments on the blog and random exchanges on Twitter. They all contribute to a feeling that I am not alone in this.

To close this post, I encourage you to invest in the people around you. Whatever your support network consists of, nurture it. Life is unpredictable and changing. Without the help of others, we are far less capable of coping with the curveballs it throws at us. Something that I am changing my opinion on is social media. Twitter is allowing me to seek out other pancreatic cancer patients, survivors and experts that I would not have connected with otherwise. Their many posts, interviews and articles are a wealth of knowledge, encouragement and support. Used in the right way, it can be a museum of information tailored to your needs. I will post a link to the blog’s Twitter account below. Please follow if you so wish by clicking on the Twitter icon. It’s another growing support network in my struggle, and I look forward to seeing where it takes me.

Merry Christmas and Thank You!

And another year slips by in what feels like the blink of an eye…

This Christmas is feeling a little different for me in a few ways. Usually, I would have spent Christmas Eve having a few more drinks than the average night with my family and friends. In past years this has resulted in me struggling to eat my Christmas Dinner or, in particularly bad years, stopping me from enjoying a single second of Christmas Day. I can’t say that I feel disappointed about this change. I still had friends over yesterday though, and they had some drinks with my family. I just enjoyed the company, and they are always great company!

Finch waited until everyone was there before walking into the room with 2 wrapped presents and a card. Everyone was smiling and I was trying to figure out what sort of smile it was. Were they happy because they knew the presents were that good? Have they done something else that I was going to struggle to accept? Or were those smiles in fact smirks? Is this going to be at my expense? I was told to unwrap the presents in the order they were handed to me, including the card in the middle.

The first present was a book. ‘Everybody Writes’ by Ann Handley, a book about improving your writing. “So the first present was incredibly thoughtful,” I thought to myself. I read the card next – “To Dan and Anna. We have put something together which will hopefully help put a smile on your faces if future dates/appointments begin to become a little overwhelming”. My interest was well and truly peaked, but it seemed another undeniably thoughtful present based on the message. I unwrapped the last present and found it was a calendar with the picture from the surprise engagement meal on it; I used this picture in my Friends & Family post. What I didn’t know at the time was that this picture was a ploy. It was a façade placed there only to naively draw me in. What followed was me flipping page by page through the calendar to various levels of laughter, surprise and a peppering of disgust. Seeing as they gave me this calendar to hang in my house, I don’t think they will have a problem with me posting it here. Flick through at your own risk, there’s some disturbing content to say the least. It really is undeniably thoughtful though, and it will definitely put a smile on my face no matter what appointments I am having to mark inside it.

I also wanted to add a couple of honourable mentions. Firstly, to Lucy Giannasi for making me the amazing ‘Ebb and Flow’ card. I love it so much and it is so beautifully done! Next, to the group of friends that are self-named ‘The Turks’. I met Dan Sayek at Arcadis when I used to work there, and he’s been a very close friend ever since. Lucky for me, Dan Sayek comes with a whole catalogue of other friends that he knows from Turkey. They all live in London and are amazingly intelligent, thoughtful and interesting people. Not only have they made the 3 hour journey from London to visit me recently, but they then sent a Christmas Hamper to Anna and I to say thank you. What they were thanking me for I am not sure, all I did was cook them some spaghetti and let them look after my dog. I am so grateful for them and all the support that they are providing to me.

Another change this year is that my brother Greg won’t be here as he failed a PCR test. The labs were struggling to meet demand with PCR results this week it seemed, and it took 5 days for him to receive his. He had packed up the car with his stuff and was ready to leave Manchester as he received the positive result via text. By this point, he was convinced that the minor symptoms he had experienced the weekend before were due to the booster jab. He had done 2 hardcore cycling sessions that week since experiencing the symptoms (for those of you who know him, you will know he doesn’t do easy fitness sessions) and neither of them phased him. He was pretty sure he couldn’t do this with covid, but he did also test positive for Covid a few days after competing in the Bolton Iron Man last year; we should have known better really. Apparently us Godley’s like completing challenging events with unknown health problems – I did my last ultra marathon with cancer and Greg completed an Iron Man with covid. Luckily, his wonderful girlfriend Kate is staying with him in Manchester, so I hope they have a lovely day together and I look forward to seeing them soon.

The biggest change for me though is my diagnosis. What is strange is that Christmas was one of the first things that played on my mind when wrestling with the idea of having cancer. “I wonder how many Christmases I have left,” I sat pondering at 4am in my hospital bed one night. It really bothered me. I wondered if I would be able to enjoy any single one of them, or if the pressure I’d put on myself to enjoy them to the fullest would make the whole thing overwhelming.

I am now in a completely different headspace to then. You cannot process news like that in a week. You can’t even expect yourself to process it in a month, or 6 months, or even a year. Everyone is going to be different, and what ‘processing the news’ means for you may be very different to what it means for me. It is also influenced by the people around you, including the doctors you have. My processing came in waves, across 2 diagnoses of very different severity and with a range of differing attitudes of different doctors and nurses. It was only when I got to The Christie in Manchester that I felt like a set of doctors truly spoke to me positively about the situation, and that made a huge difference for me. Until this point, I was still processing news that felt to me was almost certainly a death sentence, something which was taking me a while and was difficult.

Another thing worth mentioning is that I have started to use Twitter to follow others experiencing cancer. Those of you who know me likely know that I have been very anti social media for a long time (Strava doesn’t count as social media – don’t even try it). For me, I realised that social media gave me a false reality that negatively affected my relationships. It was a means of feeling like I had a lot of friends and that I was involved in their lives, but actually I was passively learning about the ongoings of their life with little effort or engagement from either of us. As a result, I deleted all of my personal social media accounts and decided that any relationships I have from now on, I must make an effort to sustain. It felt good, and I have stood by that stance for 6 years. Now that I have a Twitter for the blog however, I have started seeing some different positives to social media. Twitter is helping me find people experiencing similar things to me, which is wonderfully therapeutic and encouraging. I opened the Twitter app 2 days ago to find the following tweet at the top of my feed.

The treatment plan she speaks of here is the exact same treatment plan that I am currently undergoing. Folfirinox is the same chemotherapy type that I am on, 12 sessions (2 cycles of 6 sessions) is the current plan and the aim of that chemotherapy is to allow surgeons to perform the Whipple, which is the type of surgery required to remove the tumour. I was suddenly flooded with so much positive emotion. Primarily for this woman who I did not know, but that I knew was sitting somewhere in the world right at that moment, experiencing such an incredible feat. I felt so incredibly happy for her. But it also showed me that treatment plans work and, specifically, my treatment plan has worked for someone. It is easy to say that this should have been obvious to me, but it felt different to see a random stranger write the details of the very same treatment plan as me, within a message stating that she had beat the cancer. What an amazing feeling, and it’s another example of someone sharing their message and having a profound effect on the world around them. I responded to her Tweet, and she sent me a lovely message of positivity and strength.

It is on this positive note that I will sign-off the post for today. Thank you so much for reading my blog, it means the world to me. It feels like I have been doing it for so much longer than I have, and I keep reminding myself that it is new to me every time I get cold feet about a post or feel self-conscious about things that I am writing. I’m learning a lot about writing and about myself, and it is when I am learning that I am most motivated in life, so it is helping me tremendously with my diagnosis. I hope that you have a lovely Christmas day and spend it with whoever is closest to you, exchanging gifts and eating far too much food.

Love, Dan x